This all started with my seeing Jenny McCarthy on Oprah talking about her son. She talked about his terrifying seizures and his steady decline into the non-communicative world of Autism. Having a son myself who was recently diagnosed as being autistic, I watched avidly. This condition is so new to me and I’m still seeking out any information I can find. Obviously, there are the official websites and books that give all the facts and figures and even suggest a course of treatment (not a cure), but I like hearing from parents - people who are going through, or have been through, the feelings that I’m having.
My son never had seizures and he never had the use of words that he then lost. He simply never learned to talk. He’s three and half now and although he can scream and squeal and make a wide range of sounds, none of them are words. Words that we can understand, anyway. We always got the impression that he just didn’t see the need to communicate verbally.
All that would be fine if we felt like we had some other form of communication with him. But he doesn’t point either. Or wave. He reaches for the things he wants or let’s us know by his actions. For example, he sits at the kitchen table when he’s hungry.
Anyway, Jenny McCarthy swears that a change in diet for her son has brought tremendous improvements in his autistic behaviours. He started making more eye contact and even started getting some words back. This diet is the gluten-free casein-free diet (or GFDF).
‘Dairy’ as in anything containing milk or any form of milk. Anything with ‘lact’ in the ingredients list is a no-no.
‘Gluten’ as in wheat, barley, malt… pretty much everything processed. Battered or breaded fish fingers? No. Bagels? No. Bread? No. Cereal? No. Margarine? No. No, no, no! All my son’s favorite foods would have to be avoided. Hell, not just avoided but completely omitted from his diet.
The theory behind the diet is that some autistic children have troubles digesting these types of foods and they therefore end up acting like a toxin in the child’s body. Take away these toxins and some autistic children become more alert and ‘with it’. The diet is fairly controversial in that the medical profession has not found any substantial link between the diet and improvements in autistic children, but like with a lot of these things, it’s the parents who see the results.
Wishful thinking? Maybe. But why not try it? What have you got to lose? A few extra dollars on speciality food is the answer. But that’s it. Your child will still get his calcium from his milk substitute which, I might add, tastes just like the real thing, and can still have his toast or cereal in the morning as long as you buy the gluten-free brand.
So, we’re trying it. As of yesterday, we have cut dairy out of our son’s diet. He has started his new carton of Soy Milk, made from the soy bean rather than from a cow. Fortified with calcium and loads of other vitamins! We bought non-dairy yoghurt at $1.39 for a single serving container and non-dairy cheese (which I found to be pretty gross and it would not melt. Oh well, you can’t have it all).
The gluten-free part will be a lot harder as gluten in its many forms seems to be in everything. But we will faze it in. Dairy-free comes first and then, when we see or do not see any results from that, we’ll get on with the gluten-free part. His gluten intake has simply been reduced for now.
So after 24 hours of being dairy free have we noticed any results? It’s hard to say. Our son was happy and cheerful all day. But that’ not unusual. Hubby feels that our son was a bit more affectionate towards him today. I hope!
I’ll keep you posted.